Dr. Rajsekar Rajaraman, associate professor of pediatric neurology at the UCLA Mattel Children’s Hospital and director of the UCLA Tuberous Sclerosis Complex (TSC) Center of Excellence, was awarded the TSC Champion award by the TSC Alliance for his outstanding care for patients with tuberous sclerosis complex (TSC). The UCLA TSC Center of Excellence takes care of approximately 200 children and adults with TSC.
TSC is a rare genetic disorder that causes non-cancerous tumors or lesions to grow on different organs such as the brain, heart, eyes, skin and kidney among others. The disease can cause epilepsy, kidney issues, lung lesions and neuropsychiatric disorders or developmental disorders. Nearly 1 million people in the world are estimated to have TSC. There is currently no known cure.
The TSC Alliance, a nonprofit organization that funds and promotes and advocates for TSC patients and researchers, named Rajaraman the TSC Champion Award “in honor of his heartfelt leadership and profound devotion to the families he serves as the Clinic Director at the UCLA TSC Center of Excellence.”
“Dr. Rajaraman's clinical and research interests encompass all aspects of genetic epilepsies, with particular emphasis on TSC, CDKL5 Deficiency Disorder, and infantile spasms,” the TSC Alliance said in its announcement of the award. “He is the principal investigator of over a dozen pharmaceutical-sponsored and investigator-initiated clinical trials and studies, and he is the recipient of a 2024 Department of Defense grant investigating whether EEG biomarkers can predict seizure onset in individuals with TSC.”
The award was presented to Rajaraman at the TSC Alliance’s Comedy for a Cure event at the Irvine Improv on April 19.
